In 2021 I became pregnant, and my baby was due in December. It was my first pregnancy, and everything was going well, just as in all the pregnancy books and stories.
Week 26
At 26 weeks I felt pain in my back. I did not even think that something could be wrong with my baby.
I went to the emergency department of a hospital in Vilnius. The resident said they would check the baby first and then send me to other doctors about my back. As soon as she started the ultrasound, I saw her face drop. She called a doctor straight away, who said that my baby’s organs were full of fluid and a professor needed to do an ultrasound immediately. From what she could see, she said, the baby should already have died, or would die in my womb within a few days.
This was in late August 2021, during COVID, and my husband was abroad. I was on my own. The doctor asked if I wanted to go home and collect my things, as I would be admitted to hospital. Luckily my belongings were in my car, so I did not have to drive in that state.
When I came back, the professor and other doctors repeated the ultrasound and confirmed that my baby boy had fetal hydrops, but they could not find the cause. Many tests followed. I was sent to a geneticist, who suspected a heart defect but could not confirm it. Later, paediatric cardiologists confirmed that one of my baby’s heart valves was positioned too low, and that this condition is not compatible with life.
Alone in hospital
Two days later my husband arrived from abroad. I begged the doctors to let him in, because I needed his support so much. Under the COVID rules he had to isolate for two weeks after travelling, and I understand that. But the doctor’s words destroyed me. She asked: “What do you need your husband here for?”
My mum was allowed to visit for a few hours each day. Time dragged. At the weekend no doctors were working, and I was waiting for the results from the cardiologist and the geneticist, still believing something might change. I asked the nurses whether it could, but they did not know anything. They only knew that they had to give me medicines to help my baby’s lungs mature.
My mum asked one of the nurses what would happen to the baby after the birth. It was a nurse I had not seen before. She answered my mum, and I heard it too: “The baby will be thrown away with the biological waste.” She said it with an ironic smile. I was in no condition to interrupt her and tell her how many weeks pregnant I was.
As soon as I was admitted, a psychologist was sent to my room. I still could not believe what was happening. We spoke a few sentences, and I did not like her suggestions, such as eating ice cream in different flavours and telling my baby which flavour it was. I asked her to leave. After that there was no social worker, nothing. I only heard a doctor shouting at the nurses: “Give that woman some sedatives.”
Twelve doctors in one room
Then there was a medical team meeting. Twelve doctors sat around the room, and I sat on a chair in the middle. Each specialist told me that my baby would certainly die, but that they did not know when: maybe in a few days, maybe at 40 weeks, maybe during labour. I remember how frightening it was. I still did not believe this was happening to me. The doctors spoke from a professional perspective, as if it were an everyday case, while also letting me know that this does not happen often.
I did not ask many questions. All I wanted was to cry. Before the meeting I had read online that in some countries surgeons operate on a baby’s heart before birth, but I was told my baby was too small for this. I also asked whether I could have a caesarean section instead of a vaginal birth, and the doctors explained why not.
Four weeks of waiting
After that they let me go home and asked me to come back every week for a check-up. For three weeks I went back. In the fourth week I was told that my baby’s heart was no longer beating. That same morning I was admitted to hospital to give birth.
The birth
I asked for an epidural. At first the doctors said morphine would be enough: as the baby had already died, it would do less harm than an epidural. I insisted, because it was too hard to bear the emotional pain and the physical pain at the same time. By the time the anaesthetist came, it was too late. She tried four times, and the epidural did not work.
I do not know whether she had been told that I was having a stillbirth, but while preparing the epidural she was showing her colleague photos of her newborn grandchild, while I was in pain, losing my child. I had been in pain from 10 in the morning until 10 at night and had no strength left. They asked me to put on a hair net myself. I could not lift my arms, and they said they would not do the epidural until I put it on. They had asked my husband to leave, so he could not help me.
A nurse, a midwife and a doctor were with me during the birth. The midwife was very kind and supported me emotionally, like a mother. I think her name was Jūratė. After so much stress I forgot to ask for her details, and I really wanted to thank her later. I will always be grateful to her.
Our decision not to see him
My husband and I had decided that we did not want to see our baby after the birth. We wanted to keep him in our hearts, not in a graveyard. Jūratė told us that this had happened to her own mother, who deeply regrets not seeing her baby. During the birth I kept my eyes closed. The doctor asked if I wanted to hold him, and Jūratė told her that we had decided not to. The doctor said: “How can you not see your own child?”
I had four weeks to think about it, and at the time I believed not seeing him would be better for me. Now I regret refusing to see my baby, Leo. I hope my story can lead to changes in hospitals that help mothers in this situation to be better prepared.
What I would change in hospitals
- One doctor responsible for each mother. A meeting with twelve specialists telling you it is all over is a lot to take in, and a woman in my condition may not be able to think clearly, ask questions or understand what is happening. During my week in hospital the doctors kept changing, and the doctor at each weekly check-up was different. I no longer knew who was responsible for what, or who knew my situation. One named doctor, to whom the mother can bring all her questions, would help.
- More care around pain relief. Please be more sensitive about the epidural and do not delay it. Going through labour without one, and without a crying baby at the end, is too much pain.
- Nurses must know the situation, not only the doctors.
- A psychologist who stays involved. The psychologist should attend the medical team meeting and other appointments, so they can see how the mother is really doing. One conversation may not be enough to understand her. In my first hours in hospital I did not believe what was happening and did not want to speak to anyone, and from the few sentences we exchanged, I do not think the psychologist could see how I was really feeling.
- Information before and after the birth. A psychologist or a social worker should speak with the mother before and after labour, explain all the options for burying the baby, and explain how important it can be to see the baby and to say hello and goodbye.
- A quieter room. I gave birth in a room at the very end of the corridor, and the staff let me stay there afterwards so that I would not be moved to a room with women whose babies were alive. But the room was still on the same corridor as the other labour rooms. It was very hard to hear women scream in pain and then grow calm when they heard their babies cry. I spent more than 24 hours in that room. A more separate room would make a great difference.
Gintarė
Support for parents after loss is listed in our country guides, including Lithuania. If you would like to share your own story with MIMATIS, write to contact@mimatis.org.

















